Jason in cafe

Real People. Real Stories.

Being told you have chronic kidney disease (CKD) can feel overwhelming. It is completely normal to have questions, not just about your health, but also about how it may affect your everyday life. 

 

You may be wondering, how does dialysis work? Will I still be able to travel, work or take care of my family? 

 

To help you find answers, we have gathered some stories from real people who chose Peritoneal Dialysis (PD). Their experiences may help you understand what to expect and feel more confident about your own choices. 

1. Partnering with your caregiver

How you and your loved ones can support each other through PD.

"Working as a team to get through PD has been monumental for me personally as a patient. A lot of times when I was learning my wife would read off the steps as I would perform them, just so it was a learning experience for the both of us."

Eric  – PD patient

 

ADDITIONAL THEMES

  • Social 
  • Lifestyle 
  • In Center or Home dialysis
  • Family, caregiver
Christina

As a caregiver and a wife, I would say just to always respect your partner and be there to communicate with them about the issues that they're going through.

Christina – Caregiver and Eric's spouse

2. Living your everyday life

Keeping up with work or personal goals.

"Once I transferred into PD, I was able to live a normal life for work, I was able to hang out with family and friends, go eat, go do random things."

Justin – PD patient

 

ADDITIONAL THEMES 

  • Family 
  • Empowerment 
  • Work 
  • Patient Advocacy 
  • Lifestyle
  • In Center or Home dialysis 
Justin

I'm always trying to stay busy, you know. I work on e-commerce, I work with jewelry, I dabble into TikTok.

Justin – PD patient

Traveling while on PD

"I did go on a last minute trip to Hawaii."

Justin – PD patient

 

ADDITIONAL THEMES 

  • Social and hobbies 
  • Empowerment 
  • Livestyle
Justin

I feel like doing PD will be a lot better because you are always on your own time, you can set up in your hotel, set up wherever you are staying...

Justin – PD patient

Having pets at home

"When you first get diagnosed and you're thinking about your pets at home. Just know that they can be a part of your life."

Eric – PD patient

 

ADDITIONAL THEMES

  • Empowement
  • Livestyle
  • Social
  • Hygiene guidelines
Eric

When you first get diagnosed and you're thinking about your pets at home. Just know that they can be a part of your life.

Eric - PD Patient

3. Staying active (sports and hobbies)

Tips for staying mobile, fit, and in control of your life.

"I still work a lot. I still golf—probably more than my wife would like me to—but an active lifestyle, I think, is paramount for keeping your mental well-being throughout this process (of being on dialysis)."

Eric – PD patient 

 

ADDITIONAL THEMES 

  • Empowerment 
  • Livestyle
  • Hobbies and sports 
Eric

I probably walk 7 to 10 miles a day. I need that exertion to properly sleep at night. Being outside, I think, is so important for your mental well-being.

Eric – PD patient 

4. Getting started with PD

What to expect when getting your dialysis catheter.

"The General process of going PD starts by the placement of a catheter."

Chris – former PD patient – Transplant Recipient 

 

ADDITIONAL THEMES

  • Educational support 
  • 24/7 support 
  • Outpatient surgery
Chris

The General process of going PD starts by the placement of a catheter.

Chris – former PD patient – Transplant Recipient 

Talking to others about your kidney disease

"My wife has showed me how important it is to let everybody know what I was going through and what was happening in my life, so she's definitely been super helpful in helping me find the words to tell certain people."

Eric – PD patient 

 

ADDITIONAL THEMES 

  • Advocacy 
  • Lifestyle
  • Family, caregiver 
  • Starting on dialysis 
Eric

My wife has showed me how important it is to let everybody know what I was going through and what was happening in my life, so she's definitely been super helpful in helping me find the words to tell certain people.

Eric – PD patient 

5. Preparing for the transplant

Understanding the next steps if transplant is part of your journey.

"Being on a transplant list … it’s gonna be a journey… Just be patient, you will get there."

Chris – former PD patient – Transplant Recipient 

Chris

Being on a transplant list … it’s gonna be a journey… Just be patient, you will get there.

Chris – former PD patient- Transplant recipient 

6. Finding your community

You're not alone — connecting with people who understand.

"I would make informed decisions for yourself (about dialysis options) by reaching out to other patients -  that would guide you through all of the different aspects of this journey."

Taiylor – former PD patient, transplant recipient

 

ADDITIONAL THEMES

  • Empowerment 
  • Starting on dialysis 
  • Being young and on dialysis
  • Learning from other patients 
Taiylor

I would make informed decisions for yourself (about dialysis options) by reaching out to other patients -  that would guide you through all of the different aspects of this journey.

Taiylor, former PD patient, Patient Advocate

7. Support, day and night

How Vantive and your care team are here for you 24/7.

"That’s why we are here, to make being on PD easier for you."

Chris – former PD patient – Senior Training Specialist 

 

ADDITIONAL THEMES

  • Educational support 
  • Support 24/7 
  • Empowerment 
Chris

That’s why we are here, to make being on PD easier for you.

Chris – former PD patient – Senior Training Specialist